Devin Scullion, a 20-year-old Hamilton man who had the ultra-rare genetic disorder progeria, has died. My research into progeria for Saints, Unexpected frequently brought David's story across my desk, and indeed he was loosely the inspiration for Wu, a character in the novel who has the disorder. The Hamilton connection is a strong one, too, as Devin was one of only 200 people worldwide who suffered from the disorder, attracting worldwide interest from geneticists and physicians who traveled to Hamilton to learn more about him and his case.
RIP, Devin—I hope some of your abundant light will live on in the pages of my work.
Link to the Hamilton Spectator article about Devin's passing.